I have ME, I’ve never been particularly sporty and I’m not really known for my willpower…..but despite that I love going to the gym! If you know anything about ME then you’ll know I’m playing with fire with this one as a major part of the illness is post-exertion malaise. To put it into simple words if I physically overdo it I pay for it – big time. Not that I’ll be a bit sore or a bit tired after, but I’ll be completely wiped out, unable to function or think properly for a period of weeks or months depending on how wrong I got it!
Well, this was meant to be posted weeks ago! And from that I’m sure you can correctly work out that all has not gone as well as hoped in the last few weeks….
But some of it did……..so in the spirit of being positive let me start there.
After February half term I made the decision that I felt strong enough to ‘get back into routine’. What that means for me is being really focused on my health; taking the vitamins that I know help my body function better even when I don’t feel like it; taking the horrible powder supplements that make my body tingle and itch but go straight to the mitochondria giving them the energy they lack while minimising the effect of the lactic acid build up in my body; eating healthily (well most of the time, weekends don’t really count in my book!); fasting two days a week; listening to mindset blueprints regularly; getting back into the gym and of course being out and about on my bike with the kids. Continue reading “Update May – living with ME 2017”
I want to start this post with saying a huge thank you to everyone who took the time to comment/text/message/chat to me about my last blog post. It is still massively weird to be opening up about this side of my life, but, having now spoken to so many people who are living with similar issues, either ME or other invisible illnesses, I am happy to know my uncomfortableness (is that even a word?!) has been worth it so far!
One of the things the last few weeks has confirmed to me is that I can’t write for jack when I’m not well! But what I have been able to do is jot down random thoughts which I’ve used to write this post. And what’s come through the most in those off the wall ramblings is what I actually do on my bad days so that’s what I’m going to focus on in this post.
It’s been 4 years now since I first Googled my symptoms while sat at my desk at work in Gaydon………now I knew I had ME, but to be honest having had it under control for the last 10 years and with life taking over it clearly wasn’t in my mind enough!
Life was busy, I’d just returned to work after maternity leave with our third child. The work environment I returned to was very different to the one I left. Our two boys were in school, my daughter was in nursery. I had no time for myself. And so I focused on everything else around me and at some point I pushed it too far, and the evidence was staring at me from the top of the computer screen – top results for the symptoms I’d Googled was ME.
ME literally comes from nowhere. For me before the diagnosis life was good, I had a great social life, I was driving a sports car, I was buying a flash apartment with my boyfriend, I was fit and healthy and going to the gym regularly and work was…….well work! And then I got ill. Nothing major, just a virus my GP said. So I did what you usually do when you’re ill, rested and took it easy and waited to get better…….but I didn’t. After a few more visits to my GP and various tests I was diagnosed with Myalgic Encephalomyelitis Continue reading “Living with ME (Myalgic Encephalomyelitis)”
16 years ago supplements were never something I’d considered before, they were for older people as far as I was concerned (so kinda like my age now!) But when you’re diagnosed with something like Myalgic Encephalomyelitis I guess anything is worth a go. Continue reading “Living with ME – my supplement routine”
I have an invisible illness, 16 years ago I caught a virus and didn’t get better. Eventually I was diagnosed with Myalgic Encephalomyelitis, it has taken me many years to understand the illness let alone spell it! There are many of us suffering with these invisible illnesses, which despite being crippling at times, have no outward visible effects. That brings a set of unique challenges that need to be managed to minimise the impact on both yourself and your job.
There have been two marked occasions where I have needed to involve the company I worked for in my illness due to the symptoms being so bad; the first when I was initially diagnosed and was really ill for 2 years; the second when I suffered a massive relapse 10 years later. I got it wrong on both occasions! To be fair I got it wrong because I was ill, my symptoms made it impossible to work out what I needed to do. So with the benefit of hindsight, and being in a better place now, here’s my top 5 tips for managing your invisible illness in the workplace: Continue reading “My top 5 tips to more effectively manage your invisible illness in the workplace”
So this is my first bog post (nervous or what?!) , and I had to start with this – not giving in to ME. It’s really important to me at the moment, the last three years of my life have been dramatically affected by myalgic encephalomyelitis but I still refuse to give in to it or let it define me. Now I’ve had ME for about 15 years now, and I was very ill for the first two of them, but I then had it in control for ten years. When I say in control I guess it never really goes away, but, for those ten years I pretty much lived a ‘normal’ life. In fact so normal that I actually googled my symptoms just over three years ago, I searched on “feeling tired, can’t think straight, headache” and there towards the top of the results was the NHS Symptom checker for Chronic Fatigue Syndrome……..you can imagine how stupid I felt! Continue reading “Not giving in to ME (myalgic encephalomyelitis)”